As my long time readers know, I’ve been working on a book about NDPH for a few years now. And by “working” I mostly meaning “sitting” on it, waiting for the time and energy that only ever arrives in spurts. At this moment, I have almost completed a rough (very rough) draft of the book. I have a few things that I need to work out as far as the organization and there are a few areas that I would like to cover that I have yet to address.
The working title for the book is Living with NDPH: My Story and Yours. It begins with my story and goes on to share the stories that I have collected from readers here over the past 3 years. I’m including a section on Lyme Disease, alternative treatments that have “cured” or significantly helped people and an appendix containing a list of doctors recommended by readers here. I hope to include a few additional resources.
Now, I have a question for you! What do you want to see in the book? What would help you most (aside from a cure)?
I am still accepting stories to be included. I have many, many that recount treatments and medication choices. What I would really love to see more of at this point is the other side – how have you dealt with this illness emotionally? How has it impacted your mental health? What helps you get through the day? What do you wish the people around you would do to support you? Are you able to maintain your life in anyway (work, family, social). I am also looking for first hand accounts from teens suffering with NDPH and their parents. These stories don’t have to be long and involved or even complete. If you have something you want to say, I can find a way to include it!
Please leave your suggestions or stories in the comments section or email them directly to me at alandisman (at) gmail (dot) com.
I haven’t set a publication date yet, but I hope to soon. As always, working revolves around my pain levels and the current needs of my three daughters. I’ll keep you updated! Thank you all for your continued interest and support.