It’s rare to come across a success story when it comes to the treatment of NDPH. I found Rowan’s story today in the comment section of one of the posts here on the blog and wanted to share. I hope that this can help someone out there find relief from their pain.
“My son has recovered from NDPH and he wants his treatment documented for others. Rowan woke up on Sept. 10, 2012, age 13, with an excruciating headache which was continuous until Feb. 10, 2014.
He had done Topomax, Maxalt and other migraine medicines with no avail. Botox and DHE infusions were also tried. He was put on a low dose of Protriptyline which lessened the headaches but he was still unable to attend school and ordinary social functions. In December of 2013 we went to a new neurologist, Dr. Khoury in Dallas, TX. Rowan’s meds were bumped up to high doses of Protriptyline and high doses of Cambia. Both of these have an anti-inflammatory effect and after 6 weeks of that regimen, Rowan’s headache stopped and has not returned in the last 5 weeks.
My heart goes out all of the NDPH sufferers and please never give up hope. Regards Dr. White (Rowan’s mom)”
If you have tried these medications, please share your experience (pros and cons!) in the comment section.
Wishing you a low pain day,