On New Year’s Eve, my doctor called with the results of my most recent blood tests. The past few months have been difficult for me. In addition to the headaches, I began getting twitches, buzzing, creepy nerve feelings in my legs, then my arm, then my face. And the mind fog…which I just assumed was a progressive stage of mommy brain…has become worse.
I found a new doctor, thinking this was most likely unrelated to my headaches and didn’t feel that I had any time to wait to see Dr. Rozen or the ability to drive myself across two states feeling this way.
The new doc sent me for blood work, including a test for Lyme. In the almost six years that I’ve suffered with NDPH, I’ve been tested for Lyme at least three times. I remember sitting in my first neurologist’s office and telling him about the strange rash and the leg pain. The leg pain often increases with the head pain, though not always.
I remember discussing Lyme Disease with each doctor along the way.
This time, I tested positive.
Initially, I thought that this must be new. I must have been bitten over the summer. But the more I read, the more I think about it, the more I wonder if Lyme has been the cause of my headache all along.
I keep looking back at the past six years of my life. I’m at a loss for words to explain what I am feeling. There is hope, regret, anger and fear all wrapped into one.
The hope of being free from head pain, completely, for real, is rising up in me, offering me a life that has been gone for so long. I realize I’ve been squashing this hope for some time now, tired of the constant, continuous disappointment that comes with trying new medications or alternative treatments.
The reality is that Lyme Disease is no picnic either. It isn’t always a simple treatment, but at least you know your enemy.
I don’t have many answers right now. I think this is good news for me, though I am not entirely sure.
I guess we’ll just see how things play out from here. I started treatment late on New Year’s Eve and I hear it takes a fair amount of time to begin to feel better.
Is it obvious that I don’t feel like myself?
If you have NDPH, have you been tested for Lyme as well?