Comments on: Doxycycline and Singulair for NDPH http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/ Just another WordPress.com weblog Tue, 29 May 2012 22:43:53 +0000 hourly 1 http://wordpress.com/ By: Amy http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-836 Tue, 13 Dec 2011 17:03:25 +0000 http://lifewithndph.com/?p=61#comment-836 Definitely ask about this treatment. It is very typical of NDPH to be unresponsive to medication, so you just have to keep trying things until something works (even a little). Good luck and let us know how it goes!

]]> By: Sally http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-823 Mon, 05 Dec 2011 04:26:18 +0000 http://lifewithndph.com/?p=61#comment-823 Thanks for the post. My daughter is at 13 1/2 months of what is thought to be NDPH. We’re being sent to UCSF, but it’s good to have something new to ask about. She’s tried so many things with no effect. The only thing that touches her HA is belladona (homeopathic remedy strength) if it gets particularly throbby. But the intensity came down some when she began taking magnesium and riboflavin regularly.

]]> By: Amy http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-439 Thu, 07 Oct 2010 21:31:46 +0000 http://lifewithndph.com/?p=61#comment-439 Hi Wendy, It did work for me for a while, so I do recommend giving it a try. I eventually stopped taking it because I started getting intense stomach pain. Take a natural supplement like probiotics or acidophilous along with it to protect your digestive system.
I think I took 100mg of Doxy to start. Good luck and please let me know how it works out!

]]> By: Wendy http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-438 Thu, 07 Oct 2010 21:12:15 +0000 http://lifewithndph.com/?p=61#comment-438 Hi Amy,

Did you get any benefit from the doxycycline/singulair combo? What dose of each were you on as I am thinking of trying it also?

Many thanks

Wendy

]]> By: Amy http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-19 Sat, 12 Sep 2009 19:56:30 +0000 http://lifewithndph.com/?p=61#comment-19 Thank you Sue – I hope this will work for me. That sounds very promising for your son! It is amazing that the drug can actually “grow” what is needed in the brain. I hope they will continue researching and that the cure will be soon!

]]> By: Sueblimely http://lifewithndph.com/2009/09/10/doxycycline-and-singulair-for-ndph/#comment-18 Sat, 12 Sep 2009 08:31:07 +0000 http://lifewithndph.com/?p=61#comment-18 I do hope this works for you. I have a son with Fragile X Syndrome, a genetic disorder, and closely follow its research and clinical trials etc. Promising results have been shown with the use of an antibiotic that has been around for a while – not as a treatment but a cure! Seems that the drug actually alters a part of the brain structure, growing bits that help pass signals from one brain cell to another!

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